Trisomy 13/18 Support Groups
During Trisomy Awareness Month 2024 we wanted to raise awareness of the different support groups we have available for the community. We understand how valuable it can be to talk with other people who have a similar experience to your own.
No matter what stage of your journey you are currently in, we hope that one of our support groups will be of value to you. All of our groups are private and monitored by the SOFT UK team and volunteers.
SOFT UK - Your Trisomy 13/18 Journey
A shared group for anyone at any stage of their journey. Talk with others and ask your questions.
SOFT UK - Living With Trisomy 13/18
A group for families of children with Trisomy 13 or Trisomy 18. Ask questions and share your knowledge with others, helping to build a stronger community through shared experiences.
SOFT UK - Support For Families Ending a Pregnancy
A safe space for families who have, or are considering termination for medical reasons.
A group for grandparents to talk with other grandparents. We understand how hard it can be supporting your children going through this journey, so why not talk with others who are going through this?
SOFT UK – Bereaved Parents Support Group
A group to talk and share memories about the ones who are no longer with us.
A support group for dads to talk with other dads at any stage of their journey.
SOFT UK - Support For Friends, Family, and Colleagues
A place for your extended support network to come and talk.