Support Trisomy Awareness Month 2024

Trisomy Awareness Month aims to raise awareness of these rare conditions, helping to spread knowledge and lived experiences across different media and channels. Why not take part in our SOFT UK fundraiser to help spread awareness and also fundraise for SOFT UK?

Our fundraising page can be found here: https://www.justgiving.com/campaign/trisomyawareness2024

There are loads of different ways you can help to fundraise, from simple things like walking a set number of steps each day, to other activities like a group coffee session. All you need to do to get started is head on over to our fundraising page and the click ‘Start Fundraising’. Once you’ve setup your page and added your story, share it with your networks to help spread awareness of Trisomy.

Below are a selection of some of the different activities your fundraising and donations support:

This year, SOFT UK has already hosted our first face to face day in Northern Ireland, and we will be opening our doors to families in Leeds for the first time in May. We are aiming to host more face to face events in 2024 than ever before, supporting more families in their local areas. Some of those areas are Northern Ireland, Leeds, Wales, Scotland, and the south of England.

We are working on a webinar series to help raise awareness of Trisomy 13 and Trisomy 18, which will be shared with health care professionals across the UK. We have created our first webinar for BMUS in January, and the next one will be coming in April.

SOFT Uk will be working to put together a video exhibition where we will talk with different families and professionals about their experience with Trisomy 13 and Trisomy 18. The aim of this exhibition will be to help raise awareness of these conditions, and in order to do this we will be working in different locations and filming the videos.

Your fundraising and donations support our efforts in building more material like our webinars which can then be shared with professionals across the UK, helping to raise awareness of Trisomy 13 and Trisomy 18. It also helps us to host more face to face events, enabling us to reach more families in more areas across the UK.

We appreciate each and every one of you, and couldn't do what we do without you.

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New Podcast: The Frailty of a Butterfly

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Trisomy 13/18 Support Groups